“It just make me angry — angry and sad – that we had to fight for everything: doctors, insurance. And this (disorder) isn’t rare. This was first discovered in the 1800s, but it’s only been in the past few years that it’s become more recognized as a result of MRI testing. What’s sad for me is that you can still go into a doctors’ office, and they don’t know the symptoms.”
Deb La Due, founder of an organization that raises awareness of Chiari Malformation, a neurological disorder that is believed to occur in 1 of every 1,000 births, and her daughter, Ella Grace.